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FUELING
The Medical Advances
that will heal inclusion body myositis
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The Misson
The foundation mission is to cause, directly or indirectly, greater progress toward a medical treatment for ibm. The core activities of the project come in three parts:
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Our unique position in the rare disease arena is that our research is focused entirely on developing a human therapy for inclusion body myositis. We attempt to thoughtfully employ the best tactics and tools that we can devise, but our One Thing remains the single-minded pursuit of a medical treatment or cure for our ibm-afflicted friends. (Happily, we may make discoveries that will benefit patients in other disease conditions that share traits with ibm.)

Highly-qualified scientists can’t buy lab equipment or hire technicians with ‘public awareness.’ They can only do their work with dollars. That is why we are willing to ask concerned friends and colleagues anywhere to generously invest money in this humane work.

1) a PhD-designed medical research program, coupled with

2) a broad fundraising program to fuel their scientific work, or other catalytic activities, and

3) just enough administrative management to make it work.

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The primary catalyst to accelerated research success, is accelerated voluntary giving from us, the friends, family, co-workers, neighbors, church members & long lost acquaintances of those who suffer with ibm.
FUEL THE RESEARCH
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Fuel the research. Propel advances. Develop medical therapies.
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What we're about

Cure Machine: Inclusion Body MyositisWhenever the impossible has been accomplished, there were...somebodies...who served as the catalysts to get there. Now that our friend, wife and mother has been diagnosed with an 'incurable' wasting disease, determined that we must be ... somebody.

We'll do a share of the work, if you'll help to fuel the cure machine.

 


Yes we can

catalyze home 12The sooner we start, and the faster we run, the sooner a cure can emerge. So, banding together to carry the torch is a worthwhile effort. Developing a medicine is not impossible – if we are determined together.  The fewer years it takes, the better the quality of life for our many friends with ibm. 

Eventually, we can prevail, because progress results from effort, and hope results from progress.

 

 


Many thanks from the foundation directors to the following who have offered time, information, insight and advice along the way:

fire iconAshley Yee, Global Genes  fire iconBarbara Cubin, US Congresswoman, retired fire iconBill Cubin, CPA Consulting Group fire iconChristy Honigman, Christy Honigman Consulting fire iconEd Harvey, Harvey Economics fire iconEric Cubin, MD fire iconErin Fleming, Project ALS fire iconGeminess Johnson, Johns Hopkins fire iconJane Tueche fire iconJay Eberle, Senator John Barrasso’s office, Health Policy Analyst fire iconJen Wewers, Give Gratitude fire iconJoe Mizell fire iconKim Beer, Midnight Productions fire iconKristen Youmans, Deep End Ministries fire iconLianna Orlando, Muscular Dystrophy Association fire iconLaurie Boyer, Team Tommy Foundation fire icon Marla Williams, Community First Foundation fire iconPat Loewi fire iconPeter Nicolaysen, Nicolaysen & Associates fire iconSara Loud, Accelerated Cure Project fire iconSteve Chadderdon fire iconTabethe Berge, PMCH fire iconTim  Armour, Cure Alzheimer’s Fund fire iconTom Hume, CureJM fire iconVicki Cavaseno fire iconVirginia Fuller, Brigham and Women’s Hospital fire icon Zach Silvers, Washington University